Today was Samantha's first visit to the adult cardiology department. In August she graduated from pediatric cardiology. At first we were told the same thing - that all was well, and that actually she now only needed to be seen every 8 to 10 years. But then we got a call back saying that at closer look the doctor noticed something abnormal in her echogram. He consulted with the adult cardiologist and she agreed that Samantha should have an MRI and another consultation, which they scheduled for today.
The results are on a "is the glass half empty or half full?" kind of basis. Reggie is helping me see that the glass is half full - that we got great news today. She does not need to have anything done right now, and there is still a good chance that she will never have to have anything else done, ever. But there is some leakage of blood going back through her valve which was not happening before or was happening in the last 18 years but has recently gotten worse. It is still in the mild/moderate category and will hopefully stay that way. They are going to see her every 2 years from now on just to be sure; we don't have to worry about signs or symptoms of deterioration because the doctor said they will be able to catch things long before they become a problem.
Now here is the part that scares me/that caught me off guard - we were always told that if she did need a new valve it could be done through another catheter procedure. Turns out that is not accurate - that it would need to be done through open heart surgery. The doctor explained that Samantha and her age group are Pioneers in the area of catheter procedures to fix pulmonary valves; that they had just started doing this a few years before she was born. And so now they are seeing how the valves are holding up in these young adults.
So again, Reggie is reminding me that we walked out of there with great news - that she does not need surgery now and if the valve has to be replaced in the future, technology might have caught up with us and maybe it could be a catheter procedure by then.
Another positive way to look at things is that Samantha has a new friend. This cardiologist is so wonderful. She said that most likely things will be fine each appointment and they will just shoot the breeze - catch up with how Samantha's career is going, how her kids are, etc. etc.( - if Samantha chooses to be a Mom someday the cardiologist will watch over her with that too.) She said that she will be seeing Samantha until she is 80 years old! and then she (the doctor) remembered that that would make her way over a hundred, so eventually Samantha will graduate to another doctor in her elderly years. But it certainly gave us a positive outlook: that Samantha will live to a ripe old age no matter what the future holds in regards to her heart.
So, I can't say I didn't go into my room this afternoon to shed some tears, away from Samantha because I don't want her to be afraid. Of course she will be reading this blog post in a few minutes so maybe I shouldn't admit that. I guess it's okay for her to know that Moms get scared but eventually come to know that everything will be okay. And at least in our family Dad is the rock and keeps us all optimistic. It did make me smile to see how happy Samantha was when Reggie got off work in time to come to these appointments. He always makes things feel safe and just better.
And finally, about the big bad wolf. Another good thing about this appointment is that the doctor talked to Samantha about heart health, in general. I have been scared to have Samantha do much exercising, until after this appointment. She said that 40 minutes of aerobic, "huffing and puffing" exercise each day will be just as important for Samantha's heart as it is for everyone elses. So lucky Samantha, I will be going back to nagging her to go on walks with us, do Just Dance with us, etc. etc.